Please contact me to suggest more!
Hypermobility Spectrum Disorder / Ehlers-Danlos Societies
Find a support group or a doctor
MCAS, POTS, and other associated disorders
- POTS
- MCAS
- Neurogenic Orthostatic Hypotension
- Neurogenic Orthostatic Hypotension: State of the Art and Therapeutic Strategies
- Salt to Sodium Converter
Hypermobility Authors, Experts, Podcasts, etc
Podcasts
Authors/Experts
- Jeannie di Bon
- Dr. Lawrence Afrin (MCAS)
- Alan Spanos, MD, MA
- Kevin Muldowney, PT
- ALAN G. POCINKI, MD, PLLC
- The Hypermobile Chiro
Other Resources for Chronic Pain
Studies and Scholarly Articles
EDS/hypermobility
- MT-CYB Gene Mutation Associated With the Hypermobility Variant of Ehlers-Danlos Syndrome: A Case Study
- 1042 Sleep Characteristics In Ehlers Danlos Patients With Hypermobile Type: A Polysomnographic Study
- Predisposing factors in degenerative spondylolisthes
- JOINT HYPERMOBILITY IN PATIENTS WITH SPONDYLOLISTHESIS
- Joint hypermobility in athletes is associated with shoulder injuries: a systematic review and meta-analysis
- National Geographic: Why double-jointed people are more likely to have health problems
- Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison
- press posting about this study: https://www.ehlers-danlos.org/news/new-research-shows-heds-and-hsd-10-times-more-common-than-previously-thought/
- Book: Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder
- blog post (not peer reviewed itself but cites peer reviewed articles): EDS biology blog 1: What is EDS and how does it affect collagen?
Associations with hypermobility
- NEURODIVERGENT PEOPLE MORE LIKELY TO EXPERIENCE PAIN, DUE TO HYPERMOBILITY
- Enrichment of Patients With Ehlers Danlos Syndrome in Idiopathic Gastroparesis—A Gene Set Enrichment Analysis
Mast cell activation syndrome and related disorders
- Mast Cells, Mastocytosis, and Related Disorders
- Characterization of Mast Cell Activation Syndrome
- The Role Played by Mitochondria in FcεRI-Dependent Mast Cell Activation
- Postural orthostatic tachycardia syndrome and the potential role of mast cell activation
Patient experiences
- Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes
- How ‘Medical Gaslighting’ Affects Women With Chronic Illness: Study