Additional Resources

Please contact me to suggest more!

Hypermobility Spectrum Disorder / Ehlers-Danlos Societies

Find a support group

MCAS, POTS, and other associated disorders

• POTS
• MCAS
• Neurogenic Orthostatic Hypotension
• Neurogenic Orthostatic Hypotension: State of the Art and Therapeutic Strategies
• Salt to Sodium Converter

Hypermobility Authors, Experts, Podcasts, etc

Podcasts

• Hypermobility Happy Hour
• Bendy Bodies

Authors/Experts

• Jeannie di Bon
• Dr. Lawrence Afrin (MCAS)
• Alan Spanos, MD, MA
• Kevin Muldowney, PT

Other Resources for Chronic Pain

• Dr. Laura Kuan
• The McKenzie Method

Studies and Scholarly Articles

• “NEURODIVERGENT PEOPLE MORE LIKELY TO EXPERIENCE PAIN, DUE TO HYPERMOBILITY
• Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes
• How ‘Medical Gaslighting’ Affects Women With Chronic Illness: Study
• Characterization of Mast Cell Activation Syndrome
• 1042 Sleep Characteristics In Ehlers Danlos Patients With Hypermobile Type: A Polysomnographic Study

Mental Health

Find a Therapist/Mental health provider (US)

988 Crisis line

Mental Health America