Category: HSD

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Zebra Club

After seeing many folks in EDS communities online recommend it, I am giving Jeannie di Bon’s Zebra Club app a try, using a discount available for annual subscription if you order directly from the Zebra Club’s website.

crop unrecognizable black man sharing complains with female psychologist 1

Diagnosis: (hyper) Mobile

Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.

In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.