Explosive Reactions with Mast Cell Activation Syndrome
I thought I was allergic to alcohol and emotions. It turns out I have a condition called Mast Cell Activation Syndrome (MCAS).
I thought I was allergic to alcohol and emotions. It turns out I have a condition called Mast Cell Activation Syndrome (MCAS).
Strategies and advice, both serious and not, to make a terrible surgery recovery more bearable.
A little over a week ago, I had major knee surgery. I am currently laid up on my couch, fighting my cat for space on my lap for my computer, trying not to think of what my knee looks like under the bandages. I want to share my strategies and tips, both serious and not, to make a terrible surgery recovery more bearable.
Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.
In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.
I am a PhD Physicist & semiconductor engineer with a hypermobility connective tissue disorder, blogging about my experiences managing my conditions.