Happy EDS & HSD Awareness Month!
May is EDS & HSD awareness month, so here are a few resources to learn more, get involved, and share with others.
The Hypermobile Physicist
I Miss Having Faith in My Body
I’m grieving the loss of a body I can trust and struggling with what it means for the future. Should I have kids? With chronic pain and fatigue, am I capable of being a present, caring mother, who gives them the attention they deserve?
How to Relieve Neck Pain
Recommended products and strategies to relieve neck pain, especially in hypermobile bodies.
Explosive Reactions with Mast Cell Activation Syndrome
I thought I was allergic to alcohol and emotions. It turns out I have a condition called Mast Cell Activation Syndrome (MCAS).
The Best Products for When You Can’t Shower
When you are unable to shower, whether from illness, injury, or other barrier, feeling grimy can make an already bad situation feel worse. Here are my favorite products for feeling clean and fresh in long stretches without a shower.
How to Write Kinder and More Effective Resolutions
Setting goals can be productive and healthy, but only if done well and with true self care in mind. I’m here to advocate a gentler approach to your New Year’s resolutions, especially if you have a chronic illness.
How to Survive Surgery Recovery Drudgery: Part II
Strategies and advice, both serious and not, to make a terrible surgery recovery more bearable.
How to Survive Surgery Recovery Drudgery: Part I
A little over a week ago, I had major knee surgery. I am currently laid up on my couch, fighting my cat for space on my lap for my computer, trying not to think of what my knee looks like under the bandages. I want to share my strategies and tips, both serious and not, to make a terrible surgery recovery more bearable.
Diagnosis: (hyper) Mobile
Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.
In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.
