A physicist's chronic illness journey
hEDS / HSD / mobility aids / Support Tools / Surgery
A little over a week ago, I had major knee surgery. I am currently laid up on my couch, fighting my cat for space on my lap for my computer, trying not to think of what my knee looks like under the bandages. I want to share my strategies and tips, both serious and not, to make a terrible surgery recovery more bearable.
Conditions / hEDS / HSD
Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.
In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.
Conditions / hEDS / Personal
I am a PhD Physicist & semiconductor engineer with a hypermobility connective tissue disorder, blogging about my experiences managing my conditions.
I am a physicist with chronic conditions such as HSD/hEDS and MCAS. I write about my experiences with chronic illness and try to share anything I feel could be helpful to others.
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hEDS / HSD / MCAS / POTS / Recipes / Support Tools
More Meals for Low (or no) Spoons Days
April 10, 2024
