Tagged: chronic illness

white skeleton figurine on white table beside a laptop

hEDS / HSD / MCAS / POTS / Recipes / Support Tools

April 10, 2024

More Meals for Low (or no) Spoons Days

Low spoons meal and recipe ideas inspired by burnt out physics PhD students for the chronically ill, the injured, and the just plain tired

My collagen is garbage, and my everything hurts!

Conditions / hEDS / HSD / Just for Fun / MCAS

November 5, 2023

Battle Hymn of the Trifecta

“Battle Hymn of the Trifecta,” a silly song about chronic pain and illness with hEDS, MCAS, and dysautonomia

woman holding mirror against her head in the middle of forest

Body Image / Mental Health / Patellofemoral Pain / Personal

September 20, 2023

Body Image: How to trick yourself into loving your body

Instead of merely accepting my body as an imperfect vessel my brain rides around in, I plan to pretend that I wholly and deeply love my body.

hEDS / HSD / Support Tools

July 18, 2023

After seeing many folks in EDS communities online recommend it, I am giving Jeannie di Bon’s Zebra Club app a try, using a discount available for annual subscription if you order directly from the Zebra Club’s website.

purple and brown solar flare eruption from the sun

Conditions / MCAS

February 1, 2023

Explosive Reactions with Mast Cell Activation Syndrome

I thought I was allergic to alcohol and emotions. It turns out I have a condition called Mast Cell Activation Syndrome (MCAS).

January 17, 2023

The Best Products for When You Can’t Shower

When you are unable to shower, whether from illness, injury, or other barrier, feeling grimy can make an already bad situation feel worse. Here are my favorite products for feeling clean and fresh in long stretches without a shower.

Grief / Mental Health

November 30, 2022

On Grief

I am awed and terrified by the power of this grief, and of grief in general. Everyone’s experiences with grief are different and change with time, but as I have processed this grief of my friend’s untimely death, I have started to recognize more forms of grief throughout my life.

Red Strawberry and Raspberry on White Ceramic Bowl

Recipes / Support Tools

November 23, 2022

“Recipes” for Days with No Spoons Left

Here are some “recipes” that require minimal effort in general, but also specifically minimal stirring or cutting for those with upper extremity joint pain like me. While many of these are obvious, I hope they can generate a few new ideas for you.