Battle Hymn of the Trifecta
“Battle Hymn of the Trifecta,” a silly song about chronic pain and illness with hEDS, MCAS, and dysautonomia
A physicist's chronic illness journey
Conditions / hEDS / HSD / Just for Fun / MCAS
“Battle Hymn of the Trifecta,” a silly song about chronic pain and illness with hEDS, MCAS, and dysautonomia
hEDS / HSD / Support Tools
After seeing many folks in EDS communities online recommend it, I am giving Jeannie di Bon’s Zebra Club app a try, using a discount available for annual subscription if you order directly from the Zebra Club’s website.
Recommended products and strategies to relieve neck pain, especially in hypermobile bodies.
When you are unable to shower, whether from illness, injury, or other barrier, feeling grimy can make an already bad situation feel worse. Here are my favorite products for feeling clean and fresh in long stretches without a shower.
Here are some “recipes” that require minimal effort in general, but also specifically minimal stirring or cutting for those with upper extremity joint pain like me. While many of these are obvious, I hope they can generate a few new ideas for you.
Conditions / hEDS / Personal
I am a PhD Physicist & semiconductor engineer with a hypermobility connective tissue disorder, blogging about my experiences managing my conditions.
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hEDS / HSD / MCAS / POTS / Recipes / Support Tools
More Meals for Low (or no) Spoons Days
April 10, 2024