The Hypermobile Physicist

A physicist's chronic illness journey

Tagged: hEDS

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hEDS / HSD / Support Tools

Zebra Club

After seeing many folks in EDS communities online recommend it, I am giving Jeannie di Bon’s Zebra Club app a try, using a discount available for annual subscription if you order directly from the Zebra Club’s website.

crop unrecognizable black man sharing complains with female psychologist 1

Conditions / hEDS / HSD

Diagnosis: (hyper) Mobile

Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.

In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.

AI created abstract rendering of grief 0

Grief / Mental Health

On Grief

I am awed and terrified by the power of this grief, and of grief in general. Everyone’s experiences with grief are different and change with time, but as I have processed this grief of my friend’s untimely death, I have started to recognize more forms of grief throughout my life.