Battle Hymn of the Trifecta
“Battle Hymn of the Trifecta,” a silly song about chronic pain and illness with hEDS, MCAS, and dysautonomia
Tagged: hsd
Zebra Club
After seeing many folks in EDS communities online recommend it, I am giving Jeannie di Bon’s Zebra Club app a try, using a discount available for annual subscription if you order directly from the Zebra Club’s website.
Happy EDS & HSD Awareness Month!
May is EDS & HSD awareness month, so here are a few resources to learn more, get involved, and share with others.
How to Relieve Neck Pain
Recommended products and strategies to relieve neck pain, especially in hypermobile bodies.
How to Survive Surgery Recovery Drudgery: Part II
Strategies and advice, both serious and not, to make a terrible surgery recovery more bearable.
How to Survive Surgery Recovery Drudgery: Part I
A little over a week ago, I had major knee surgery. I am currently laid up on my couch, fighting my cat for space on my lap for my computer, trying not to think of what my knee looks like under the bandages. I want to share my strategies and tips, both serious and not, to make a terrible surgery recovery more bearable.
Diagnosis: (hyper) Mobile
Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.
In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.
