A physicist's chronic illness journey

crop unrecognizable black man sharing complains with female psychologist

Conditions / hEDS / HSD

Diagnosis: (hyper) Mobile

Ehlers-Danlos Syndrome (EDS) and related conditions are being diagnosed more frequently now than they were in the past, but it’s still maddeningly under-diagnosed. I now know I had symptoms of hEDS from as young as 8 years old, but it took until age 33 for me to get a diagnosis.

In this post I’m going to walk through my experience getting a diagnosis in some detail, including explaining the 2017 Ehlers-Danlos criteria. I had no idea what to expect going into this, so hopefully if you are seeking care this post will help give you some context ahead of time.

AI created abstract rendering of grief

Grief / Mental Health

On Grief

I am awed and terrified by the power of this grief, and of grief in general. Everyone’s experiences with grief are different and change with time, but as I have processed this grief of my friend’s untimely death, I have started to recognize more forms of grief throughout my life.

Happy Thanksgiving Greeting Card on Brown Envelope

Anxiety / Mental Health

The Practice of Gratitude

It’s Thanksgiving Day in the US, and as I prepare to go celebrate with my closest friends, I wanted to share some thoughts on gratitude. Gratitude is not a thought or a feeling, but...

Red Strawberry and Raspberry on White Ceramic Bowl

Recipes / Support Tools

“Recipes” for Days with No Spoons Left

Here are some “recipes” that require minimal effort in general, but also specifically minimal stirring or cutting for those with upper extremity joint pain like me. While many of these are obvious, I hope they can generate a few new ideas for you.